The First Lady, Her Excellency, Mrs. Rebecca Akuffo-Addo finally Met 7-year-old Ayeyi Yiadom-Boakye, a girl with Osteogenesis Imperfecta (Brittle Bone). It had been the wish of Afia Ayeyi, the Osteogenesis Imperfecta Foundation (OIF) ambassador, to meet the First Lady. When they finally met she described little Ayeyi has a cheerful young beautiful child with so much optimism.
Osteogenesis Imperfecta is a condition that affects one in 15,000. The First Lady acknowledged the great support system that Ayeyi has. She admitted that with such a support system, the little girl can look to the future with so much hope.
Ayeyi gave Her Excellency a little surprise. She gracefully offered to sing the favourite song of the First Lady. Mrs. Rebecca Akuffo-Addo admitted that their encounter inspired her.
Background
Doctors advised Ayeyi’s mother to abort her during her twenty-eighth week in the womb due to the rare condition, but her mother kept the pregnancy till the very end.
Now aged 7, Ayeyi Yiadom Boakye who lives in Cape Coast with her family has bones that break easily, sometimes with just a wave of her hand. It is a rare genetic condition with no cure. Doctors call it osteogenesis imperfecta, which means “imperfectly formed bone.”
According to the Osteogenesis Imperfecta Foundation, the genetic disorder can cause bones to break from little to no apparent cause.
Watch the touching Video Below
